Monograph · 2020
Allies and Obstacles
Disability Activism and Parents of Children with Disabilities
When parents fight for their disabled children, whose voice leads?
2 national awards348 pages
Edited volume · June 2025
Family and Disability Activism
Beyond Allies and Obstacles
- Publisher
- Temple University Press
- Published
- June 2025
- Length
- 188 pages
About the book
Family and Disability Activism picks up where Allies and Obstacles left off. Instead of studying four disability communities from the outside, it gathers first-person, cross-disability stories from disabled people and family members who identify as BIPOC and/or LGBTQIA2S+.
The contributors show how race, ethnicity, gender, and sexuality shape the way families meet segregation, institutionalization, and the special-education system — and how activists who live at those intersections are moving the conversation from rights toward justice.
Praise
The best short anthology I’ve read on disability justice activism in years.
Contents
- page 1
Introduction
- 1page 11
Familial Relationships in Asian American Disability Advocacy and Activism
- 2page 28
Learnings from My Mother’s Couch Corner: Becoming a Latina Disability Activist
- 3page 39
Tàcharan: An “Autie”-Ethnographic Examination of the Biopolitics of Changelings and Cyborgs
- 4page 53
Empathy Deficits among Neurotypicals
- 5page 75
Black Deaf Ordinary Who Deliberately Signs
- 6page 87
Intersections of Deafness, Blindness, Deafblindness, and Gender: The Deaf Community, Blindness, and Deafblind Activism in Families
- 7page 108
Aging Out of Children’s Hospitals: People with Complex Medical Conditions and Their Families in the Twentieth and Twenty-First Centuries
- 8page 125
Survive and Thrive: How Little Lobbyists Empowers Families to Fight for Disability Justice
Jeneva Stone, Elena Hung, Laura LeBrun Hatcher, and Roger A. Stone
- 9page 148
How to Do Limitless Lifelong Self-Determination
Contributors
- Diane Compton
- Erin Compton
- Jaclyn Ellis
- Laura LeBrun Hatcher
- Elena Hung
Bridget Liang- Jenelle Rouse
- Cheryl Najarian Souza
- Jeneva Stone
- Roger A. Stone
Lisette E. Torres
Grace Tsao
With the editors, Pamela Block, Allison C. Carey, and Richard K. Scotch.
Contributor profiles and newsFree audiobook & accessible resources
Every reference cited in Family and Disability Activism, chapter by chapter, together with full text descriptions of the cover and of the book’s figures and tables. Prepared by Dina Dwairi. Made to be read alongside the audiobook or with a screen reader.